TSC is één van de ongeveer 7000 bekende "weesziekten" (zeldzame ziekten). Niet elke arts is kent TSC of is op de hoogte van de evoluerende kennis over deze complexe aandoening, en dat is heel begrijpelijk. Hier vindt je informatie over plaatsen waar goede en actuele kennis beschikbaar is. In de universitaire centra met een multidisciplinaire TSC raadpleging worden de noodzakelijke controleconsultaties gegroepeerd op één dag.
Universitaire centra met een multidisciplinaire TSC raadpleging:
UZ Brussel
Algemeen zorgcoördinator (kinderen en volwassenen):
Constantino Galasso
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02 474 97 83 Verantwoordelijke TSC kliniek UZ Brussel
Prof. Peter Janssens
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02 477 60 55
Constantino Galasso
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02 474 97 83 Verantwoordelijke TSC kliniek UZ Brussel
Prof. Peter Janssens
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02 477 60 55
UZ Leuven
Coördinator:
Prof. Dr. Liesbeth De Waele
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016 34 38 27
Prof. Dr. Liesbeth De Waele
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016 34 38 27
UCL/St. Luc
Coördinator:
Dr. Valérie Dekeuleneer, dermatologe
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Dr. Valérie Dekeuleneer, dermatologe
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Secretariaat:
Sylvie de Wolf
02 764 10 44
Sylvie de Wolf
02 764 10 44
Ziekenhuizen met TSC artsen:
UZ Gent
Contact:
Dr. Helene Verhelst
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Dr. Helene Verhelst
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UZ Antwerpen
Contact:
Prof. Dr. Anna Jansen
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Prof. Dr. Anna Jansen
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ULB/Erasme
Contact:
Dr. Alec Aeby
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Dr. Alec Aeby
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